So sorry I didn't post anymore, yesterday...I was dealing with some issues that kept me from my journal.
I'm still dealing with that crampy, stabbing pain...and trying to figure out why it's happening. My sister asked if maybe it was being caused by my back brace, because the location of the pain is right where the brace rests on my hips....hhmmmmm....ok, so I'll ask the folks at the Cancer Center, today, and my Surgeon on the 28th.
I'm also dealing with some very unpleasant emotions, brought on by a situation that is well out of my control, but not so much with another. This person, whom I appointed as my Power of Attorney for Healthcare...has all of my things, including some very necessary documents that I've been asking for these past 6 weeks; and said person has yet to "find the time" to locate my documents among my belongings. Granted, this person has a house full of young kids, and a business to run (practically on their own!), and is also in college....but, even with that busy of a schedule, I would've brought those documents to someone, by now!
I'm so angry!!! And I'm beginning to feel like I'm not as important to this person as I once thought I was! These documents I'm asking for are my identification documents....namely, my social security card, birth certificate and photo ID. As long as I don't have them, I can't finish my paperwork for Medicaid or for Disability; and my bills are coming in!! I have also asked this person to return my laptop to me, which has been on loan to them since April, of this year...they were supposed to buy themselves a laptop with summer semester's student funds, so I could have mine back; fall semester starts at the end of this month, and I still don't have my laptop!
In my anger and hurt, I publicly posted a prayer to God, on Facebook, complaining about all of that and how it was making me feel...I let my emotions determine my actions, and ended up hurting a few people in the process. The resulting apology was also public. But I'm asking whoever's reading this....if you're one of the people who was hurt by that post, I do apologize; but, put yourself in MY shoes, and tell me you wouldn't feel the same way!! I know there are a few people who are sincerely trying their best to help me be reunited with my documents, and I'm sure having to go through the person who's holding things up is not pleasant....but think about this through MY perspective, just for a minute!
I've been diagnosed with a terminal illness (still hate that word!), I spent a whole month in two medical facilities, as a result of a serious surgical procedure to alleviate some of the difficulties that illness had caused. My life has been turned upside down, because I went from being totally independent, to having no other choice but to depend on someone for my daily needs! And the drugs I'm being given to end the life of this terminal illness might actually cause me MORE suffering!! This is a scary time for me, folks!!
Meanwhile...the person whom I elected to take care of my medical needs, if I'm not able to do so, has decided that I'm not worth their time, anymore. They're "too busy" to take the time to find my documents, and instead, have placed all of my belongings in the basement of their business....behind some other things. Remember....this is how I'm feeling...this is my take on the situation. So, yeah...you'll have to forgive me if I get a little rude, arrogant, or bratty about it; but, taking care of it should not have been THIS difficult!!
I digress....I've also noticed that all day yesterday, I was hungry at appropriate times, but had no desire to eat. I did eat...I just didn't want to! That's happened to me, at times, during my "normal" life, too. In fact, I've been up since 4:30am (it's 5:51am, as I explain this part), this morning...my tummy just rumbled, and I just don't feel like eating. Don't worry....I'll eat something! LOL!!
I have a chemo appointment, this afternoon. My sister cut my hair super short, last night, too...I'll have to post a picture of it, soon! We were told that hair loss is much easier to deal with, when the hair is shorter before it falls out. It's less traumatic, they say....we'll see! I should start losing my hair within the next 2 treatments.
I'll close this journal entry, here, and go find something to eat for breakfast. Thanks for letting me rant, earlier!! Stay tuned for further developments! LOL!!
Updates
Written Aug 16, 2012 5:54pm
Finally got my State ID and my social security card (yay!!)...still waiting for my birth certificate. I even got my laptop back, and my purse, too!!! (happy dance!)
Just got back from my chemo appointment...now I have to watch to see if I get any side effects. I didn't get hit too hard, last time, but this is the second treatment; I've been told that it may take a few treatments before I'll notice anything unpleasant. The dogs are sniffing me....I must smell different, since the treatment! LOL!!
Hungry!!! I haven't eaten much today, because I'm just not in the mood to eat....but my sister says she's going to cook some pork shops and broccoli for supper! Yummy!!!
I even had a nap, while I was hooked up for the treatment...so happy about that! I was beginning to feel sleep deprived! LOL!! Well, I'm gonna see if she needs help with supper....see ya, later!!
End of the Day
Written Aug 16, 2012 9:09pm
Super tired, so I'm gonna make this short....
My Oncologist gave me a Rx for my Tamoxifen ....and I can refill it 11 times!!! I'm gonna be on this pill for a while! LOL!! Makes me wonder how long I'll be taking chemo treatments! I think I'll ask, next time I go for a treatment!
Time for bed.....good night!
Good Morning!
Written Aug 17, 2012 9:09am
I've been up for a while...got up around 5am, after only 6 hours of sleep. But....they were 6 consecutive hours!! Yay! Yeah, I did say "good night" at 9pm, last night, but I didn't get to sleep until 11pm....and I'm feeling a little sleepy, at the moment.
It's Day 2 of the 2nd week of chemo treatments....feeling fine, other than a bit sleepy. Thank God the only side effect I seem to be experiencing is fatigue!! I did ask the Nurse at the Cancer Center, yesterday, about those red dots on my shins...she said it might be a reaction to the chemo, and to keep an eye on them; if they spread up my legs and to other parts of my body, she said to notify my Oncologist.
Breakfast, this morning was a peanut butter & jelly sandwich, Greek yogurt, and pink grapefruit juice...yummy!! I may have leftover supper, from last night, for lunch this afternoon....pork chops, broccoli and mac-n-cheese. Yummmmm!!
End of the Day
Written Aug 17, 2012 9:46pm
LOL! After 2 consecutive late nights, talking to my youngest daughter on the phone, I'm up past my 9pm "bed time" and she didn't call!
Lunch was as planned....pork chops, broccoli and mac-n-cheese leftovers from last night; and for supper, this evening, I had chicken, carrots and potatoes! Yummy!!
Haven't heard from my son in a while, so I sent him a message on Facebook. And, I'm missing my husband something fierce! We're separated, at this time....it's a long story, and I'm sure I'll share it, someday; I just don't feel like sharing, right now. I just wish he was here.
Since it is past my "bed time"....I should get to sleep. Still keeping an eye on my system, to see if I get any side effects from the chemo; it's only day 2, out from my second treatment. So far.....so good!
Good Morning!
Written Aug 18, 2012 6:42am
Totally blessed to see another day!! Although, this day is starting out rather oddly....both of my hands are itching, like crazy!! I have no idea why this is happening....but it is.
I had to take some Miralax, this morning....haven't gone in a few days. It'll be all good by this afternoon, though! I can pee just fine, on my own, but my bowels seem to need assistance....I think that system forgot how to function, after my surgery! LOL!!
Yesterday was a rather emotional day, for me....I'm missing my hubby, and all my kids. I keep in contact with my kids, through Facebook, but I miss seeing them. It was nice to have seen all three of them, when I was in the hospital....even though the circumstances weren't all that great.
I hope today is a better day!!
Noticing Myself
Written Aug 18, 2012 3:47pm
This is the second Saturday, that I've needed a nap....it happened last Saturday, too; and I seem to nap for about 3 - 3 1/2 hours. I have chemo on Thursdays....could it be fatigue? I didn't eat lunch, before my nap, this time....and in a little over 2 hours, we'll be having supper.
End of the Day
Written Aug 18, 2012 8:05pm
I ate a little bit around 4pm, and we had supper around 6pm....and even though I had a nap, I still feel worn out; so I'm thinking this must be the side effects of the chemo. I pray that this is the only side effect I have to endure! Just being tired, all day long, is no fun....I don't want to know what dealing with any other side effects, on top of this one, might feel like!
Have a wonderful evening....see you, tomorrow!
Just an Update
Written Aug 19, 2012 10:10am
When I began taking Tamoxifen, I was instructed on what the side effects might be....swollen feet and ankles (got it!), nausea (nope), fatigue (got it), hot flashes (not even one!), etc.
Hot flashes were pointed out repetitively, because this pill can cause menopausal symptoms...but I haven't had any, thank God!! They also stressed that I need to notify my Oncologist if I skip my period, for the same reason. I had one, while I was at the hospital, in July; and my wait is over! I started, this morning! Yay!!
Never in my life, as a woman, have I ever been happy to see my period happen; until now! LOL!! But, I know now, my body is not going menopausal...praise God!!
Late Start to the Day
Written Aug 20, 2012 8:29am
When I got up around 4am, this morning, I decided to go back to sleep for a little while, thinking I was only going to get another 2 hours.....I woke back up around 8am!
Fatigue is a wonderful thing! LOL!! (sometimes)
Good Morning!
Written Aug 21, 2012 7:30am
I didn't take a nap, yesterday, because I had slept in....but this morning is no fun, at all!
It seems that my body is still trying to form a normal sleep pattern. For the last couple days, I've enjoyed 7 consecutive hours of sleep....last night was a different story. I went to bed around 9:30pm, and only slept for 4 hours! I've been awake ever since.
I hope my body allows me a nap (or two) today! I could certainly use one!
~~~~~~~~
That was the last journal entry...and to this day, my body is still trying to find its rhythm. I'm able to do almost everything I was able to do, before this all started, but I have a loooong way to go, before I'm back to normal. And, I may never be that level of normal, from what I'm being told.
There may be a new normal for me, in my future! And, I'm still dealing with emotional moments, from time to time. Sometimes, I don't even need a reason...I just start crying.
This is when I'm thankful that I have God in my life...when I'm feeling weak and vulnerable, I can get with Him, and hide from the world, and my own emotions.
And, I still don't have all my things from that person I mentioned, in my journal...but life (and all its business) is currently taking precedence, and this time...I'm ok with that! I'll get the rest of my things, when I'm meant to be reunited with them. It's all in God's hands
This is as bald as I got, while on chemo...and in the middle of winter, it wasn't really all that fun! LOL!
 |
| I never got my wig, but I had plenty of hats! |
And, this is me now....taken on my birthday (Feb. 27)!
 |
| This photo was taken with my new camera! My birthday present to myself! LOL! |
Thanks for letting me share this moment with you! Have a blessed day! oxoxox